The most common anomaly is an hemangioma affecting about 1 in 10 children. Port Wine Stains affect about 1 in 1,000 children and although there are no known statistics for arteriovenous malformations, lymphatic malformations and venous malformations we believe the incidence is about 1 in 50,000.
Vascular anomalies are rare disorders. As a consequence of this, most physicians will only see one or two in a lifetime. It is therefore important to go to a center where these vascular anomalies are seen frequently.
On average, it will cost between $10,000 to $50,000 for a procedure. This amount may vary depending on the severity and the length of hospital stay. Frequently, a child will require more than one procedure.
There are very few centers that have extensive experience in the treatment of vascular anomalies. It is therefore often necessary for a child to travel out-of-network for treatment. Some insurance companies will not allow this. Depending on the type of insurance the family holds, it is often very difficult to gain out-of-network approval. Insurance companies can be difficult to deal with in this process.